Exploring what matters most to people living with RA
To understand the full reality of life with rheumatoid arthritis (RA), Lilly created RA Matters, a first-of-its-kind traditional and social media survey.
Life with RA should not be a compromise. It should be about taking control of the condition and not being defined by it. Most importantly, it should prioritize what matters most to each individual living with RA.
The RA Matters survey
By using innovative data collection, engaging communities through traditional and online means, the RA Matters survey explored different aspects of life with RA. This brief qualitative survey, commissioned by Lilly, shed light on the current struggles, aspirations and what matters most to people who live with RA.
Of the 6,208 participants in the RA Matters survey, 5,400 were people who had been diagnosed with RA, and 808 were rheumatologists or healthcare professionals (HCPs) that treat RA. From a Canadian perspective, 809 patients living with RA participated in the survey, while 60 rheumatologists and/or healthcare professionals also took part.
The survey was carried out between November 4, 2016 and February 13, 2017, from eight participating countries: Canada, France, Germany, Italy, Netherlands, Spain, Sweden and United Kingdom. It looked at the personal impact of RA on daily activities, relationships, work and people’s aspirations.
Here is a snapshot of our survey findings:
- 73% of Canadians surveyed reported feeling frustrated over having their activities affected by RA.
- 46% of Canadians completing the survey indicated that their career progression had slowed or that they had been forced to retire.
The level of understanding and empathy from those around can have a profound effect on people’s behaviours and emotions. Over 53% of Canadians with RA surveyed reported wishing that others had a better understanding of the physical impact of their RA.
Despite major advances in the treatment of RA, the physical symptoms of the condition continue to be the main barriers for people undertaking work. Canadian respondents to the RA Matters survey cited: using their hands (49%), fatigue (46%) and pain (45%) as the biggest barriers to carrying out work.
The RA Matters interactive data platform
We believe that a deeper understanding of what matters most to individuals – in terms of relationships, activities, work and aspirations – can support people with RA to live the best lives possible.
RA Matters Survey
Explore the most important themes and findings from the #RAMatters survey. From relationships to work and activities, discover what matters most to those with RA.
RA Matters – shining a light on RA
RA Matters explored four key four areas related to the experience of living with RA; daily activities, relationships, work and aspirations. Find out more about our survey findings via this infographic.Download infographic